Mobile, Imaging, pervasive Sensing, Social media and location Tracking or “MISST” technologies enable the collection of personal health data in real-time, 24/7. Using these tools, researchers […]
A few weeks ago, the New York Times revealed that British political data consulting firm Cambridge Analytica1, improperly accessed, manipulated and retained the data of over […]
Strava prides itself on “connecting the world’s athletes.” Founded in 2009, the California-based company aims to be a social network for athletes. Strava is both a […]
Opioids are a class of drugs that include the illicit drug heroin, as well as prescription pain relievers such as oxycodone, hydrocodone, codeine, morphine, and fentanyl. […]
In recent years, pervasive information and communication technologies have created new opportunities for researchers to understand human behaviors. Social media platforms like Facebook and Twitter are […]
On November 13, 2017, the Food and Drug Administration approved its first digital pill. Abilify MyCite is the first drug with a digital ingestion tracking system […]
Carter-Harris, L., Pagoto, S. and Nebeker, C. (2017). Using social media for research: recruitment, intervention design, and ethical concerns. Workshop chaired by S. Lillie and D. […]
Last month, we posed a MISST-related research ethics dilemma and asked for your expert opinion on how you would identify risks for the following study: Steve […]
Recently, associate professor and bioethicist Jon Merz gave a talk on legal privilege in the context of consent (or lack thereof) in emergency medicine and human […]
Are you conducting or reviewing mHealth research? If so, make sure you consider the following 16 points from the mHealth Evidence Reporting and Assessment (mERA) checklist […]
Have you heard of “mHealth” or “digital medicine” or “MISST”? MISST is an acronym our research team uses to describe research that involves the use of […]
Wearable sensing devices are widely accepted and utilized in young adult populations (a.k.a. the “Invincibles”). The use of wearable technologies that collect personal health information introduce […]
Over a year ago, we set out to create the Connected and Open Research Ethics (CORE) platform. Using a participatory design approach, our team developed a […]
Camille Nebeker, Ed.D., M.S. | OHRP/HHC: Foundations of Trust: Connecting our Community to Research | October 25, 2016 Camille Nebeker, Ed.D., M.S., gave the keynote address at an OHRP […]
Inspiring research talks by J. Craig Venter and five translational scientists supported by the Altman Clinical and Translational Research Institute (ACTRI) marked the ACTRI Day of […]
Research Ethics in the Digital Age, an MD2K webinar with Camille Nebeker, Ed.D., M.S., of the University of California-San Diego took place on Thursday, January 26, […]
As an aging population seeks improved health care, the costs of providing it keep rising. Meanwhile, promising research findings may remain stuck in the lab for […]
Camille Nebeker, assistant professor of Family Medicine and Public Health at the University of California San Diego, will lead an effort to investigate whether federal regulations […]
A University of California, San Diego, research team hopes to craft ethical best practices for research studies involving participants’ personal data, including confidential healthcare information. Read […]
The CORE project, launched by the University of California-San Diego, will establish an ethical framework for the use of digital tools and platforms in research. Read […]
A team at the University of California, San Diego has received funding from the University and the Robert Wood Johnson Foundation to create a web-based resource […]
Please join MD2K and CORE Principle Investigator Camille Nebeker Ed.D., M.S., at 2 p.m. CT on Thursday, January 26 for Research Ethics in the Digital Age. […]
The proceedings from the February NASEM meeting, An Examination of Emerging Bioethical Issues in Biomedical Research: Proceedings of a Workshop is now published and freely available. […]
A few weeks ago, the New York Times revealed that British political data consulting firm Cambridge Analytica1, improperly accessed, manipulated and retained the data of over […]
Opioids are a class of drugs that include the illicit drug heroin, as well as prescription pain relievers such as oxycodone, hydrocodone, codeine, morphine, and fentanyl. […]
On November 13, 2017, the Food and Drug Administration approved its first digital pill. Abilify MyCite is the first drug with a digital ingestion tracking system […]
Nebeker, C., Murray, K.E., Holub, C., Haughton, J., and Arredondo, E. (2017). Acceptance of Mobile Health in Communities Underrepresented in Biomedical Research: Barriers and Ethical Considerations […]