Publications



Latest


Nebeker C, Torous J, Bartlett Ellis R. Building the case for actionable ethics in digital health research supported by artificial intelligence. BMC Medicine. 2019. doi: 10.1186/s12916-019-1377-7

Grant AD, Wolf GI, Nebeker C. Approaches to governance of participant-led research: a qualitative case study. BMJ Open 2019;9:e025633. doi: 10.1136/bmjopen-2018-025633

Wang S, Bolling K, Mao W, Reichstadt J, Jeste D, Kim H-C, Nebeker C. Technology to Support Aging in Place: Older Adults’ Perspectives. Healthcare. 2019; 7(2):60. doi: 10.3390/healthcare7020060

Nebeker C, Bartlett Ellis R, Torous J. Development of a Decision-making Checklist Tool to Support Technology Selection in Digital Health. Translational Behavioral Medicine. 2019. doi: 10.1093/tbm/ibz074

Harlow J, Weibel N, Al Kotob R, et al. Designing an Effective Platform for the Connected and Open Research Ethics (CORE) Initiative. Science and Engineering Ethics. 2019. doi: 10.1007/s11948-019-00086-3

Pagoto S and Nebeker, C. How scientists can take the lead in establishing ethical practices for social media research, Journal of the American Medical Informatics Association, ocy174. 2019. doi: 10.1093/jamia/ocy174



Ayers J, Caputi T, Nebeker C, Dredze M. Don’t quote me: Reverse identification of research participants in social media surveillance studies. Nature Digital Medicine, 1:30. 2018. doi: 10.1038/s41746-018-0036-2. 2018.

Arigo D, Pagoto S, Carter-Harris L, Lillie S, Nebeker C. Using social media for health research: How to avoid common pitfalls in recruitment, intervention and research ethics. Digital Health, in production: doi: 10.1177/2055207618771757. 2018.

Dunseath S, Weibel N, Bloss C, Nebeker C. NIH support of Mobile, Imaging, pervasive Sensing, Social media and location Tracking (MISST) research: Laying the foundation to examine researchethics in the digital age. Nature Digital Medicine, 1:1; doi:10.1038/s41746-017-0001-5. 2018.

Das G, Chung C, Nebeker C, Bietz M, Bloss C. Privacy Policies for Apps Targeted Toward Youth: Descriptive Analysis of Readability. JMIR Mhealth Uhealth 2018;6(1):e3, doi: 10.2196/mhealth.7626, PMID: 29301737, PMCID: 5773816. 2018. mhealth.jmir.org/2018/1/e3

Nebeker C, Harlow J, Espinoza Giacinto R, Orozco-Linares R, Bloss C, Weibel N. Ethical and regulatory challenges of research using pervasive sensing and other emerging technologies. IRB perspectives, AJOB Empirical Bioethics, 8:4, 266-276, doi: 10.1080/23294515.2017.1403980. 2017.

Torous J, Nebeker C. Navigating Ethics in the Digital Age: Introducing Connected and Open Research Ethics (CORE), a Tool for Researchers and Institutional Review Boards. J Med Internet Res2017;19(2): e38 doi: 10.2196/jmir.6793. 2017.

Bloss C S, Nebeker C, Bietz M, Bae D, Bigby B, Devereaux M, Fowler J, Waldo A, Weibel N, Patrick K, Klemmer S, Melichar L. Re-imagining and re-designing human research protections for 21st century science. J Med Internet Res 2016;18(12):e329, doi: 10.2196/jmir.6634, PMID: 28007687. 2016. www.jmir.org/2016/12/e329

Nebeker C, Lagare T, Takemoto M, Lewars B, Crist K, Bloss C, Kerr J. Engaging participants to inform the ethical conduct of mobile imaging, pervasive sensing and location tracking research. Translational Behavioral Medicine: Policy, Practice and Research. doi: 10.1007/s13142-016-042604. 2016.

Nebeker C, Linares-Orozco R, Crist K. A multi-case study of research using mobile imaging, sensing and tracking technologies to objectively measure behavior: Ethical issues and insights to guide responsible research practice. Journal of Research Administration 46(1):118-137. 2015.
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